Sofia was just a year old when she was diagnosed with a rare form of leukemia—so rare, doctors told her father, Ignacio, they had not seen her type of cancer in 15 years. Sofia’s only hope for a cure was a blood stem cell transplant.
But Sofia didn’t have a fully matched donor in her family. A search for a donor was made on the Be The Match Registry®, but none were a match for Sofia.
Along with their doctors, her family made the decision for Sofia to receive a haploidentical transplant from her father, Ignacio. While recent outcomes of haploidentical transplants are promising, many transplant doctors prefer a fully matched adult donor over a haploidentical donor.
Sofia died six months later. Her family remains committed to raising awareness and encouraging more ethnic diversity on the Be The Match Registry.
Please join today.
We’ll ask you a series of questions about your medical history to see if you meet basic qualifications.
We’ll need to get a sample of your DNA. Your kit should arrive in about 3-7 business days.
It’s easy – just swab your cheek and mail the DNA sample back to us to complete your registration.
Because of the genetic complexity of matching donors to patients, it could be weeks, months or years before you’re contacted to donate.
Be ready if you’re contacted as a match. If called, you’re a patient’s best genetic match from the entire registry and perhaps their only hope for a cure.