Roman has a rare disease called Shwachman-Diamond Syndrome. As a result of the disease, Roman has a weakened immune system—and something as common as a cold could be deadly. A blood stem cell transplant from a genetically matched donor is his only hope to fight his life-threatening disease.
Roman’s family is on a mission to find a life-saving match for their son, but his mixed-race heritage (Roman is Chinese and Italian) makes it more difficult. There are currently no matches on the Be The Match Registry for Roman. Finding his genetic match is going to take more than asking Alexa—it takes people like you who are willing to sign up and save a life.
We’ll ask you a series of questions about your medical history to see if you meet basic qualifications.
We’ll need to get a sample of your DNA. Your kit should arrive in about 3-7 business days.
It’s easy – just swab your cheek and mail the DNA sample back to us to complete your registration.
Because of the genetic complexity of matching donors to patients, it could be weeks, months or years before you’re contacted to donate.
Be ready if you’re contacted as a match. If called, you’re a patient’s best genetic match from the entire registry and perhaps their only hope for a cure.