Stories of you could be the cure.

My name is Henley. I’m 4 months old, and I need saving.

I have 3-6 months to find a matching marrow donor to fight a rare genetic disorder.

Within 24 hours of Henley being born, Henley’s mom knew that something wasn’t right. She was having rapid respirations, wasn’t gaining weight, and looked very pale. At 6 weeks old, Henley was diagnosed with Shwachman-Diamond Syndrome, a rare disorder that results in bone marrow failure.

A bone marrow transplant could be Henley’s cure, but she needs a matching marrow donor first—and she needs it now. Her older twin sisters aren’t a match, but you could be.

To save baby Henley and patients like her, her family is asking that you join Be The Match Registry®. The more potential donors on the registry, the better Henley’s chances are for living a full and healthy life.

WHO WILL YOU SAVE?

HELP SOMEONE FACING A BLOOD DISEASE.
JOIN BE THE MATCH REGISTRY®.