Bruno is only 4 months old, but he’s already gone through chemotherapy. He has a rare and life-threatening condition called hemophagocytic lymphohistiocytosis, HLH, and a blood stem cell transplant is the only cure. Like most patients, Bruno does not have a fully-matched donor in his family. He is most likely to match a Latino donor due to his Latino and European mixed heritage. Unfortunately, there are no genetically matched donors for Bruno on the Be The Match Registry®.
For patients like Bruno, we ask that you not only join the registry yourself—but help us spread the word.
**UPDATE – Bruno could not find a match on the donor registry, so along with their doctors, his family has made the decision for him to receive a haploidentical transplant from his father. While recent outcomes of haploidentical transplants are promising, many transplant doctors prefer a fully matched adult donor over a haploidential donor.
Bruno’s family continues to encourage others to join the registry so that other families don’t need to make the tough decisions they have regarding alternative treatment options.
We’ll ask you a series of questions about your medical history to see if you meet basic qualifications.
We’ll need to get a sample of your DNA. Your kit should arrive in about 3-7 business days.
It’s easy – just swab your cheek and mail the DNA sample back to us to complete your registration.
Because of the genetic complexity of matching donors to patients, it could be weeks, months or years before you’re contacted to donate.
Be ready if you’re contacted as a match. If called, you’re a patient’s best genetic match from the entire registry and perhaps their only hope for a cure.